Social Media and Online Health Sites Begins the Conversation with Doctors and Nurses

By Barbara Ficarra, RN, BSN, MPA

My post on KevinMD, “Social media starts the patient dialogue with doctors and nurses” talks about the importance of gathering health information online to get the conversation started with doctors and nurses.

A patient apologized to me for asking so many questions. There is no need to apologize, I said to the patient; it’s wonderful that you have so many questions concerning your health care. I mentioned to her that she is an “empowered and engaged patient,” and that is a good thing.

It’s no secret that health consumers are turning to the internet for health information.

In a recent article from MediaPost News, Gavin O’Malley writes that, according to new a study by Epsilon Strategic & Analytic Consulting Group, that, “40% of online consumers use social media for health information — reading or posting content — while the frequency of engagement varies widely. According to the study, individuals who use healthcare social media fall into two broad groups: the 80% who are highly engaged patients, and take active roles in health management; and the 20% who lack confidence to play an active role in their own health.”

Highly engaged patients are proactive in their health care

The reasons health consumers engage in health care social media are simple.

They are looking for emotional and informational support. By engaging in online health communities many people find that emotional support they are looking for. They find reassurance from other people going through the same experience. They can collaborate and share information. They gather health information from various sites to help them gain knowledge.

There’s no question that today’s patients are savvy health care consumers

Today’s patients are e-patients.  Surrounded by technology, researching health information on the Internet has never been easier. Patients are engaging in communities and social networking sites and the exchange of information between patients has proven invaluable to some, thanks to the e-patient and Health 2.0 movement.

Dave deBronkart, diagnosed with advanced kidney cancer quickly became engaged in the internet searching desperately for health information and support. He became an empowered and engaged patient surrounding himself with invaluable information and support.

I asked Dave about his experience as an e-patient. “I joined the online health communities and found affirmation that I was indeed at the right hospital, and I obtained firsthand experiences from other patients learning what they went through.” Enthusiastically and adamantly he said, “People search for information about everything else, why wouldn’t they search for health information to try to help themselves in a crisis.”

He added, “The internet doesn’t replace doctors. It’s an additional valuable resource.”

Still, doctors, nurses and other health providers question the social media value

So while many health consumers are searching the web for support, reassurance and specific health information and health news, doctors and even nurses continue to question the value of the internet for patients.

There’s a plethora of health information on circulating the web and some health care providers feel that patients may be obtaining inaccurate information.

Will health information online make doctors obsolete?

In’s recent post, “Health information online won’t make doctors obsolete,” he asks the following:

But are doctors in danger of being “phased out” by Google and other search engines? … In an interesting perspective piece by Pamela Hartzband and Jerome Groopman in the New England Journal of Medicine, the answer appears to be no … Doctors have to get used to the fact they are no longer the sole source of a patient’s health information. Instead, they need to serve more as interpreters of data, and be willing to separate the tangible information from the increasing amount of noise patients find online.

In that NEJM perspective piece, Hartzband and Groopman provide spot on information when they write about the relationship between doctors and patients:

… sending e-mail is quite different from speaking with a patient face to face, and doctors must consider carefully what they say and how they say it. It’s impossible to judge the effect on patients of information transmitted through cyberspace: we can’t observe grimaces, tears, or looks of uncertainty. And written dialogue is quite different from spoken conversation: replies may be delayed, phrases may be more stilted, tone of voice is absent. We should pay close attention to any unintentional fraying of the physician–patient bond.

Face to face communication remains critical for the doctor/patient relationship.

Bottom line

It’s important for doctors, nurses and other health professionals to understand that Google, social media sites, health news and information sites and online patient community sites will not replace them. It’s simply a tool that offers additional information, and it allows the conversation to get started between health provider and patient. Doctors, nurses and other health providers need to engage in the internet and social media platforms to help educate the health consumer.  They have the power to provide accurate, reliable and truthful information. They should not shun away from the internet but embrace it and join forces with the health consumer. Partnering together is a very useful and empowering.

Additionally, the internet will not change the underlying need for face to face interaction and engagement between doctor and patient. That personal interaction will always be paramount.


[Original post is published on KevinMD.  Thank you to everyone for their RTs.]

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    I love it when I find out that patients are involved in their own care. It is also a surprise how many patients listen to my shows each week. As a producer and podcaster of shows like the Nursing Show, I always assume I’m talking to other nurses or paramedics. When patients touch base with me by email, Twitter or Facebook, it is often their questions that make it into the show.

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